News
Happy Holidays with PWS
As soon as Halloween is over the world launches into the excitement of the holiday season. We love the holidays like any other family. We love the décor, fun traditions...
Happy Holidays with PWS
As soon as Halloween is over the world launches into the excitement of the holiday season. We love the holidays like any other family. We love the décor, fun traditions...
I Manage Her Spoons
I recently read a blog where a woman explained to a friend how it feels to live with a chronic disease as they were casually having lunch at a cafe...
I Manage Her Spoons
I recently read a blog where a woman explained to a friend how it feels to live with a chronic disease as they were casually having lunch at a cafe...
Why Dr. Miller?
This past month we had the chance to take Kimber to see leading Prader Willi Expert/Pediatric Endocrinologist Dr Jennifer Miller in Gainesville, FL. Yes, at 30 weeks pregnant we scraped together...
Why Dr. Miller?
This past month we had the chance to take Kimber to see leading Prader Willi Expert/Pediatric Endocrinologist Dr Jennifer Miller in Gainesville, FL. Yes, at 30 weeks pregnant we scraped together...
Robbed of Normal
When we first received Kimber's diagnosis I thought we would never live a day without PWS ruling our daily life. Yes, we still have therapy and doctors appointments several times...
Robbed of Normal
When we first received Kimber's diagnosis I thought we would never live a day without PWS ruling our daily life. Yes, we still have therapy and doctors appointments several times...
Welcome to Holland
My grandma gave me a wonderful essay written by a woman named Emily Perl Kingsley at the beginning of this journey and I have read it over and over on...
Welcome to Holland
My grandma gave me a wonderful essay written by a woman named Emily Perl Kingsley at the beginning of this journey and I have read it over and over on...
Kimber's Prader Willi Diagnosis
Friday, May 10, was one of those days every NICU mom fears. It's that moment when you round the corner to enter your little baby's room only to find unfamiliar scrubs surrounding...
Kimber's Prader Willi Diagnosis
Friday, May 10, was one of those days every NICU mom fears. It's that moment when you round the corner to enter your little baby's room only to find unfamiliar scrubs surrounding...